Post about my battle with Guillain-Barré syndrome.
For the past week, I have had this pain in my foot a shooting pain in my heel that was really strange. I was fearing some of my old symptoms were returning. I can’t really feel the bottoms of most of my feet just a tingly sensation in some toes. As it turned out there…
Planning for this trip started months ago, it was planned as the best available excuse to visit Brampton Civic Hospital to determine what was real and what was not. I had already sacrificed a day from this mini-vacation for my day visiting the Anthem of the Seas and had Friday to Tuesday for a road…
It has been a while since I have done any writing and there was no real good reason other that I wasn’t myself on the pills. The tale started shortly after I had gotten out of the hospital. I was really hoping on a more abridged and unrealistic timeline for my recovery. I was in…
Back in June, I was in a position that I was struggling with motivation to do anything. There was constant nervousness about falling and not able to get up on my own and I was doing very little. After talking with my doctor, based on online research, I read that it was a common side-effect…
To say that I would never watch a gymnastics movie, while that. Is simply not true. I loved the movie “Stick It” and must have seen that movie dozens of times. The movie I just saw was “Full Out”. This is based on the true story of Ariana Berlin. Early on in the movie, she…
This summer I volunteered with the Fundy Fringe Festival again. Giving my physical limitations I was really worried if I could actually do it. It has been the highlight of my summers for the past several years and I really didn’t want to miss out. This story begins with the gathering on May 20th. At…
As it was becoming clear that I needed to get motivated to go to work. It was also clear that getting up to catch a bus was not really physically possible given my state. I was going to need a car. I had set in my mind from two years earlier that I wanted a…
On my way out of the hospital I was so hurried to get out of there I got my prescription list and that was it. I was gone just after lunch. I probably should have asked questions about the follow-up but didn’t. When I got home I spent a lot of time watching TV and…
After the Christmas party, I was pumped and the goal wasn’t to just walk but to get out. The next weekend I went to a movie with a friend. The main goal that I needed to go home was to go up my front steps and to transfer onto a shower bench. After lots of…
On the spur of the moment I came up with a wild goal of getting to my work Christmas party on January 21st. I then told my Physio and OT that this was going to be my goal right after the Christmas holiday. Step 1: The Car Transfer Up to this point , I was…
Back when I was in ICU, you cannot imagine what it is like to not really know what is real and what is in your head. When I first had the machines breathing for me, I felt like I was in control of them and that they were supporting me when my brain wanted air…
After lunch, on November 23rd I was wheeled down the hall to the next tower. I had escaped the mean nurses and now entered the rehabilitation program floor. I remember the weather was overcast or raining it was dark. This isolation room would be my final prison for the next 3 months. I had remembered…
On my left hand, my Ulnar nerve had never really come back. The end of March, I had a referral to the plastic surgeon to see if he could do anything. It was pretty fast after the referral that I got the appointment to see him earlier in the following week. I accepted and met…
It’s now November 12th and I just got moved out of the ICU! It was a bit exciting for the change of scenery. However, it took forever to get service. I needed desperately people to talk to. I was having pain from not moving so bad in what I still couldn’t move. It was very…
I’m going to move the story along and will in the future write more hallucination stories. Once it was determined that I was going to go home, the nurse told me and I wanted to bad to leave Brampton. Mostly because I believed that the whole town wanted to kill me in the riots. I…
This is another one of my memories while under good drugs in the hospital, most of it never happened but it is how I remember it happening. I was brought for the morning after cleanup to this glass office building that was being used to house patients. As the day went on the nurse was…
The following events are what I remember happening but I was on good drugs and were what my mind remembers happening only. I cannot tell what never actually happened. — After blacking in an out, there were periods where I was conscious an periods that I wasn’t. After the first night, I was put to…
As I was in the ambulance rushing to the hospital. I noticed that it was a Peel Region paramedic so I realized I wasn’t going to Toronto and probably Mississauga and the ride seemed really long. The biggest thought on my mind at that moment was not my condition, but that I couldn’t get ahold…
This post also has a soundtrack. The André Rieu version of Arrivederci Roma. It is September 24th, as we left for the sightseeing of Rome. I was a bit worried to go out on the street. There was a long protest going down the street for the freedom and recognition of a people in a…
As the story starts to get more dramatic we need to get into the mood. I have a fitting sound track for this portion. “Walk to Rialto Bridge” This is the final day September 23rd before things start to go bad. The morning is sunny. We check out of Hotel Park in Ljubljana. Since the…
